Who We Are
The Heart of Illinois Down Syndrome Association, Inc. (HOIDSA) is a local support group of parent volunteers funded through donations and fundraising activities. We formed in the 1980’s and were established as a 501 (C) (3) organization in 2003. We operate under the oversight of a Board of Directors consisting of thirteen members.

The Heart of Illinois Down Syndrome Association, Inc. is funded by donations from the community, and through special events held during the year including an annual Spaghetti Dinner, and Golf Outing. Our families also enjoy numerous opportunities throughout the year to come together in fellowship at monthly meetings and additional social gatherings.

For years, HOIDSA has proved its commitment to improving the quality of life of persons with Down syndrome, as well as those with other disabilities, by sponsoring local workshops and conferences on topics such as health, inclusive education, and behavioral support strategies. Hundreds of parents, educators, direct care providers, and other advocates have benefited from these opportunities. The list of nationally renowned experts and speakers HOIDSA has brought to the tri-county area continues to grow, and we have the reputation of being one of the only local groups to provide these trainings to educators and others at a reasonable cost.

What We Offer
• Support and Advocacy
• Resource Library
• Conference Stipends
• Recreational Scholarships
• Monthly Newsletters
• New Parent Packets
• Family Networking Opportunities
• Annual Buddy Bowl/Pizza Party
• Speakers on Disability Issues
• New Parent Open House
• Biannual Workshops
• Collaboration with Service Agencies
• Schools Supporting Inclusion Grant

IEP Resource Advisers

Several HOIDSA moms who have experience with special education law and are knowledgeable about school issues and accommodations/modifications would like to act as resources for other parents in our group who have questions or concerns.

Feel free to contact:
Teri Ehrenhardt - 309-467-6113   ehrenhar@mtco.com
Deb Fornoff - 309-444-2508   debfornoff@comcast.net
Julie Heim - 309-263-8293   ajheim@mtco.com
Christine Massey - 309-347-2588   cmassey1466@yahoo.com

Join Us
Our general business meetings are held on the first Monday of the month, September through May at 6:00 p.m. Other special events, presentations, and socials are held periodically with prior notice given in the newsletter. We maintain an extensive resource library of print and video material to inform parents and the public of the social, medical, and educational aspects of Down syndrome.